Events and Rides to raise money for Vermont Rare and RASopathies research
In support of Shane Bailey
Because RASopathies are so rare, there is very little support for research. As we find out more and more information about rare disease, how many kids and families are affected and in the bigger picture how closely some of gene mutations are to other major diseases, this shows the great need for continued funding for research!
MB and I are trying to raise money every way we can. We’ve decided to ask for sponsorship to participate in various races, rides and events and also host our own events and rides. AND Why Endurance events; because they are hard, challenging and at the same time, satisfaction guaranteed! Not to mention the battle with a rare disease is a marathon, not a sprint!
Please click through to each event for more details.
http://www.rasputitsagravel.com/ Burke, VT – April 21, 2018
Million Dollar Bike Ride, Philadelphia PA – May Date to be confirmed
3rd Annual RAS Ride and Trail Run, Peru VT – June 30, 2018
Carrabassett Challenge, Carrabassett Valley, ME – July Date to be confirmed
http://www.endurancesociety.org/ Glacier Grinder, Killington, VT – July Date to be confirmed
VOGP, Woodstock, VT -August Date to be confirmed
Labor Day 130k, Peru, VT -September TBA
If you do not want to participate in an event but would like to make a donation or sponsor Jack or MB in support of Shane and RASopathies research you can do so via Paypal. Click the following button to be redirected to Paypal to make a donation: